The Complete Directory for People with Chronic Illness

“The Complete Directory for People with Chronic Illness “offers a comprehensive overview of 90 specific chronic illnesses from Addison’s to Wilson’s Disease” and each chapter includes a description of the medical conditions and a list of resources. Additionally the directory provides three useful sections: a two-part table covering body systems and chronic illnesses; “Cognitive Behavioral Therapy Improves Functioning for People with Chronic Pain Study Shows,” an essay; and “Next Steps after Your Diagnosis: finding Information and Support,” presenting five basic steps to help cope with the chronic illness diagnosis. The bulk of the book is comprised of chapters on the 90 chronic illnesses: Down Syndrome, tuberculosis, brain tumors, hypertension, sleep disorders, skin disorders, hearing impairment, heart disease, and many more. New to this edition is a chapter on post-traumatic stress disorder. This edition also includes approximately 10,000 new and updated listings. In each chapter, resources listed are arranged within sections: National Agencies and Associations; State Agencies and Associations; Foundations; Research Centers: Support Groups and Hotlines; Books; Children’s Books; Magazines; Newsletters; Pamphlets; Audio and Video; and Web Sites. Organizations listed contain information about name, address, website, telephones, officers, and a description of mission. Book entries include author, title, address of publisher, description, phone number, website, and ISBN number. The Complete Directory for People with Chronic Illness is highly recommended for public library collections. It brings together in one volume a wealth of information about specific chronic illnesses.”
-ARBA, 2018

“This well-organized and complete resource provides access to immediate information useful to patients, families, caregivers, and more. Recommended.”

“Now in its 11th edition, this volume is among the most useful of directories, with its goal of helping people with long-term medical conditions find helpful resources. It provides valuable information on some 90 illnesses, ranging from Addison’s disease to Wilson’s disease. Arranged alphabetically by disorder, each section beings with a very brief description of the illness, probable causes, symptoms, and treatment options. Following are listings with contact information for national associations, state agencies, libraries and resource centers, publications for adults and children, research centers, support groups and hotlines, audio and video resources, and websites. Included is a section titled “General Resources” for all types of chronic illness, a list of Wish Foundations, and a section titled “Death and Bereavement,” along with indexes by entry and geography. Prefatory matter includes “Next Steps after Your Diagnosis: Finding information and support”—a rudimentary but relevant brake on patient emotions, advising patients to take a breath, see a doctor, and the like. …This directory is a good starting point for those seeking more information on particular conditions.”

“This volume is recommended for public, medical, and university science libraries.”