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The Complete Directory for People with Chronic Illness

The Complete Directory for People with Chronic Illness provides a comprehensive overview of 90 chronic illnesses and information on condition-specific support services and resources. This new edition has been designed to offer assistance to all those involved in the chronic illness community, with resources for patients, families, healthcare professionals, and other caregivers.

The National Center for Health Statistics defines a chronic illness as "one lasting 3 months or more," and surveys report that 125 million Americans currently suffer from a chronic illness, though this number is expected to reach 160 million by the year 2020. These conditions range from Addison's Disease and Fibromyalgia Syndrome to Parkinson's Disease, Visual Impairment, and much more. This directory will prove invaluable to all who deal with the many aspects of chronic disease.

This edition has been significantly revised and contains over 10,000 updated and new listings, including an entirely new chapter on Post-Traumatic Stress Disorder. All listings include the name of the organization or publication, as well as mailing addresses, phone/fax numbers, email addresses, website information, and contact information for key executives. Brief descriptions and other details are also included, depending on the type of listing.

The Complete Directory for People with Chronic Illness begins with an introduction to help users navigate this helpful guide, followed by three valuable elements:

  • a Chronic Illness Body Chart, which includes a list of chronic illnesses and their relevant body systems, and then a list of body systems and the chronic illnesses that affect it;
  • an article called "Cognitive Behavioral Therapy Improves Functioning for People with Chronic Pain," which discusses the "most frequently used psychological intervention for people with chronic pain, and new approaches for improving CBT outcomes...
  • and an article called "Next Steps After Your Diagnosis," which offers information and support in five steps.

Following this introductory material, the 90 specific chronic illness chapters are arranged alphabetically by illness name. Chapters begin with an easy-to-understand description of the condition, including cause, symptoms and common treatment options. After each illness description, a variety of condition-specific resources are listed, including national associations, state agencies, libraries, resource centers, magazines, newsletters, pamphlets, research centers, books for adults, books for children, support groups, hotlines, audio and video resources, websites, and more. These listings include complete contact information with website and email addresses, where available. Most listings also feature key personnel and a brief description of the organization. Other information is offered based on the type of listing; for example, magazine entries often include frequency of publication, number of pages, and subscription cost, while association entries include year founded, number of members, and annual dues.

Several supplemental chapters offer more resources for those in the chronic illness community. The General Resources chapter lists associations, state agencies, resource centers, support groups, and print and electronic resources that are non-specific to any condition. The Wish Foundations chapter contains listings for organizations who work to fulfill the wishes of children with chronic or terminal illness. Finally, a Death & Bereavement chapter offers support services for those who find themselves or a loved one close to death or in the grieving process.

The last portion of The Complete Directory for People with Chronic Illness consists of two indexes: an Entry Name Index that alphabetically lists all entries in the book, followed by a Geographic Index that organizes all listings according to their geographic location.

The Complete Directory for People with Chronic Illness is a time-saving and handy tool for those suffering from a chronic illness, as well as families, medical professionals, teachers, social workers, mental health professionals, and hospice providers. This guide, saving hours of internet search time, is a valuable asset to the collections of larger public and academic libraries. With this new edition, everyone involved in caring for those with chronic illness can have, at their fingertips, access to the thousands of important resources available to help individuals achieve a better quality of life.

Includes One Year of Free Online Access on the Grey House Online Platform, plus a link to this content can be added to your Salem Press landing page.

This database is available for subscription online on GOLD, Grey House Online Databases.
With a subscription to the online database, users can access this wealth of information in just minutes. With the keyword search, quick search and expert search on GOLD, users can quickly and easily find the information they're looking for. Plus, subscribers can do quick or in-depth searches, save their searches, save search results, sort search results, view company profiles, download contact sheets, click through to email and web hotlinks, and so much more. Call (800) 562-2139 to set up a tour of the online database.

Many of our directories are available in a database format that you can download into your own spreadsheet or database software. Using this downloadable database you can print out mailing labels, segment the database by geographic area for your sales team, print out prospect sheets and much more. Plus, you can customize the database to meet your own specific search criteria.

Click on the here to download a datacard. Datacards outline pricing and ways in which you can segment the database. Contact our list manager at or (800) 562-2139 x118 for up-to-the-minute counts or for more information.

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Pub. Date: August 2017
Softcover: 940 pages
ISBN: 978-1-68217-376-3
Price: $165
Includes Free Online Access for One Year on GOLD